The Big Change

Nearly 5 years ago we decided to change our lives.  We sold our beautiful big house we had built.  We got rid of the big mortgage that we could only just afford.  I gave up my job that I liked but didn’t love.  I decided to follow what I was passionate about and that was using the knowledge and experience I had gained through having my beautiful daughter with special needs and help other families that were at the beginning of their journey or helping those who may not be quite coping and need a little help or just someone to listen to them.

Firstly, I enrolled at TAFE and started volunteering as a Teacher’s Aide.  I realised very quickly how much I loved this work.  The following year I gained full time employment at a local mainstream school as a Teacher’s Aide for Special Needs students.  I now love going to  work and find it really rewarding as I am able to use my knowledge and skills I have gained to help the students as well as to help the school with the way they deal and understand families, as I am able to give an insight as a parent of a special needs child as well as a teacher’s aide.  I also love being able to assist the families of the students.  They love being able to talk to someone that they know understands their concerns and issues and that can emphasise with them.  Sometimes they just like having me to unload to knowing that I won’t judge them.

This year I have decided that this isn’t enough. I want to do more and help more families.  I have done a presentation to support service providers from a parent’s point of view and also a presentation on our AAC journey to assist speech therapists understand the journey from a families point of view and to assist other families to hopefully motivate them to keep going with their journey and to not give up.

I have started this blog to share our family’s stories, share some tips along the way that I hope you find useful and hopefully to help others who may be in similar circumstances to us.

Today I had a very rewarding day, today we had the first meeting of my newest endeavour, iChat My Way.  It is a fun social group in the Newcastle area for people with complex communication needs, like my daughter, who use alternative ways to communicate (AAC) like iPads, photos, pictures, signing and gestures etc and their carers.  It has been developed by myself and Kim, a speech therapist that I met through my presentations and at the AGOSCI conference I attended in May.  We realised there was a need for a group like this one and I am very pleased and proud to say we have put our thoughts and ideas into action and the group now has an identity and has had it’s first meeting. Please read my next blog entry which will tell you all about our meeting and I will share some photos as well.  It was very rewarding and lots of fun.

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The Future Looks Brighter

During our lives we meet inspirational people who change our outlook on life and on the future.

This has been happening to me this year while I’ve been doing my presentations and sharing our daughters story in relation to her disabilities and mainstream schooling and her communication journey.  I’ve met young adults with disabilities who through adversity have become successful . By successful I mean they are happy, they are doing jobs they love and being an integral part of society. Now isn’t that what we all want for all of our children regardless of their ability.

I have meet young non verbal adults with other disabilities as well, just like our daughter, who are attending uni, have great jobs and have great social networks.

These young adults are all amazing and have made the future look so much brighter for me when thinking about the future for our daughter.  I can now see that there are lots of opportunities for her once she leaves school.

I will continue to give her the opportunities to grow as a person and find her way.  For her to work out who she is,  what she wants to do and her passions in life.  The only difference is now I truly believe anything is possible.

The future looks so much brighter!!